I am a very lucky man – I’ve got an amazing wife and am the father to three wonderful kids. Lylli was born on Halloween in 2008, Gracie was born November 2010 and although she only lived for 17 months, she will remain as much a part of this family as the rest of us, and Mickey Gray, our first son, was born in June of 2012. I’m not going to say that life has gone exactly as I would have wanted, but it is a good life and I am determined to make the best of it.

This blog is an attempt to document my quest to become a dad that my family can be proud of.

Tuesday, November 16, 2010


So I’m finally at the point where I can start making money for the DSAMN.  I now weigh 290, so every lb I lose from here on will make money.  As of today, the total of all pledges adds up to $26.50 per lb.   Thank you so much to those of you that have pledged in support of this effort.  For those that haven’t, I encourage you to consider making a pledge (send an email with your per lb amount to daddythefatty@live.com) every penny raised in this effort will go to the Down Syndrome Association of MN.
We are in the single digits for days until Gracie’s due date on 11/25.  For some reason, I’ve got 11/23 in my head.  Of course, as coincidental as everything has been lately, we were talking last night and wouldn’t be surprised if she decided to arrive on 11/22  (Five years to the day since the arrival of our friend Tracy’s son Will).  Bottom line is she’ll be here any day – we are so excited for her to get here so we know what we’re up against.  Carrie has been going for tests every Monday and Thursday for awhile now – Gracie has been very active (breech one minute and not the next).  I believe right now she is pointing in the right direction, so the thought of  c-section is no longer there unless she flips again (and of course if something happens during birth that would necessitate it).  Yesterday she met a family at Children’s from Fargo with a 3 ½ month old son with what looks like the same issues as Gracie.  She was able to see him in the NICU hooked up to all of the machines.  She told me that she thinks it’s going to be hard for me to see – considering the one time Lylli was in the hospital (with RSV), I had to walk out into the hall to keep myself from tearing the people off of her as she cried while they were trying to get blood, etc. I’m going to have to agree with her.  Carrie has begun a caring bridge site through the hospital that we will add updates as we begin this journey with Gracie for friends and family to follow along ( http://www.caringbridge.org/visit/graciedelaney ) -- It’s been very hard for me to see how difficult this experience is on Carrie – I am so amazed by her strength and am very proud of her.  I know I am a major pain in the butt sometimes and am not always sure what to do.  I hope I do her justice while we go through all of this.  If I could take all of the scary bad parts of this from her, I would in a heartbeat.   
This upcoming Saturday is Carrie’s birthday.  Her parents gave her (us) tickets to a play called “Life Is Sweet” at the Lab Theater downtown.  Our tickets were for last Saturday’s matinee, but due to the sudden blizzard like conditions on that day, the play was canceled.  I am hoping that we can get there to the matinee next Saturday (on her actual birthday).  Several of the actors are people with Down syndrome.   I’ve been told that it’s amazing and that the talent of these actors is very encouraging for soon to be parents of a girl with Ds.    (http://www.tcdailyplanet.net/arts/2010/11/08/life-sweet-interact).  If we make it to the show, I wouldn’t count out the middle of the show as another moment that Gracie chooses to arrive.  Lylli has been so excited to sing happy birthday to her mommy on her birthday.  This is a very exciting time for us!!
Our heads our spinning – we are scared and excited.  We could use any positive energy you could send our way  I know this is brief and there’s probably many things that I am missing, but I just wanted to give a quick update on some things 

1 comment:

  1. You do not know me, but I am been following your blog for a while. I have a 14 month-old daughter, Ellie with DS. Please know that I will be praying for all of you and little Gracie. Positive thoughts coming your way.