What an amazing couple of weeks we've had – I know that I should've been updating this blog, but things have been pretty hectic and my wife has done a great job keeping folks updated on Gracie's caringbridge site (http://www.caringbridge.org/visit/graciedelaney). On Saturday, May 7th, friends and family threw an unbelievable benefit for Gracie – Hundreds of people visited throughout the day and night. There were so many wonderful aspects to this event – There was something for everybody -- young and old – It was so nice to see many old friends and family, new friends, and even many that we didn't even know – All brought together to support our little girl - most of these people have not yet even been able to meet her yet due to the fact that we've had to keep her away from others to avoid infection as she got stronger in preparation for our trip to Boston. We were completely blown away by the whole thing, are beyond thankful, and promise to pay it forward. Being reminded of our giant network of support just days before our trip has helped us so much in this scary time.
Sunday and Monday were spent preparing for our trip and spending some quality time with Lylli – We woke up very early Tuesday morning and completely filled our car with all of the things we needed to drag with us to Boston – Besides getting all of the items checked and onto the plane – the experience wasn't too bad – we were happy to have the oxygen condenser with us because about 15 minutes into the flight, Gracie's O2 saturations (sats) dropped into the mid 60's, but with a tiny bump of oxygen, she was right where she needed to be. She fussed a few times, but with the help of the pacifier and some pats on the back, she was relatively easy to keep content. Once there, we managed to round up all of our gear – A friend of mine knew a guy that knew a guy and arranged to have a beautiful Cadillac Escalade there to pick us up and bring us to the place we were staying. After settling into our new home away from home for a bit, we put Gracie in the stroller and walked around in an attempt to explore the area. We found a Trader Joe's down the road and picked up a couple things for breakfast the next morning and some of those dark chocolate caramels that they sell there that are without out a doubt sold under the table to Trader Joe's by the devil himself – Man are they good!!!!! What a beautiful place – Boston Children's is affiliated with Harvard medical school – The whole area is beautiful. We are staying in a beautiful old home in an area similar to the large old homes surrounding the lakes in the uptown Minneapolis area. We are staying at the Yawkey Family Inn – an old Victorian mansion, turned frat house, turned reasonably priced housing for families with sick children – it is a beautiful less than mile walk from the hospital. We were definitely spoiled at the RMH in Minneapolis, but this place is also very nice. I'll stop there for now and continue my recap in a later blog... Stay Tuned!!