I am a very lucky man – I’ve got an amazing wife and am the father to three wonderful kids. Lylli was born on Halloween in 2008, Gracie was born November 2010 and although she only lived for 17 months, she will remain as much a part of this family as the rest of us, and Mickey Gray, our first son, was born in June of 2012. I’m not going to say that life has gone exactly as I would have wanted, but it is a good life and I am determined to make the best of it.

This blog is an attempt to document my quest to become a dad that my family can be proud of.

Wednesday, August 18, 2010

Still in Limbo

Well our latest trip to the perinatologist and cardiologist has us a little frightened.  Besides the obvious and certain surgery needed around 4 months old to repair Gracie's AV valve defect in her heart, there is additional concern about the left side of her heart not developing as it should.  The cardiologist said that there were a few signs that we could be optimistic, but when Carrie asked if she was going to make it, he said that he was almost certain that she would be born, but its what happens after that which will determine the rest. Not exactly what we were hoping for as a response.  Its been determined that she will delivered at Abbott Hospital downtown.  This will allow them to immediately rush her to the NICU at the attached Children's hospital.  This is tough on Carrie -- When Lyl was born, they immediately set her on her chest and, with the exception of a 15 minute stint later in the day so they could do a couple standard tests, she was with us in our room until we left the hospital (and come to think about it about half way into it, she sent me to go check on her).  Carrie has given me strict instructions that I have to follow Gracie to the NICU and stay with her there.  I guess if we have to go through this, at least we will be in the best place for it - If we were to deliver at the same hospital that we had Lyl, they would need to rush her to Children's in an ambulance, etc.  I often think about how I wish that we didn't know anything in advance and found out when she is born, but when you consider all of the details that we are able to work out to give her the best chance of making it, I am thankful that we know in advance that she has Ds.  We go back on Sept 16th to see if she has made any improvements. 

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